This is my last post. We are closing this chapter. Lucas is well, and he is ready to move on. We are thankful to have begun to feel like a “normal family” with a “normal kid.” We are eternally grateful to so, so, so many people for whom helped Lucas get well. We intend to leave this blog here as a story of hope, good will, and courage for other families who may face a similar situation and set of decisions. Reddit will always be with us (see the Reddit tattoo post).
Lucas is headed to Kindergarten in just a few short months. He is a boy with many dreams, and the good fortune to have a new, functioning immune system.
Grow cells grow.
The Gonzalez Family <3
With the removal of his port and his most recent chimerism studies, added with his not having required IVIG in some time, Dr. Parikh made the recommendation that Lucas would be ready for a Pre-K setting. This news was incredibly exciting but also anxiety ridden for his Mommy! Immediately, I began asking internal questions:
- Where is there going to be a program that still has space and is high quality?
- What will the sick policies look like?
- How am I going to facilitate all of this now, with everything we have going on???
YIKES! Deep breaths and calm words from Daddy, helped me to settle down! Thankfully, we were able to find a wonderful program, with one special spot for Lucas, it opened because a family was relocating. The sick policy far exceeds that of MANY other settings. Can you believe that in some schools the kids have to vomit twice (not just once) before they are sent home? I was astounded.
Lucas had his first full day today. He met his teacher yesterday, and today was his transition day to see how he would do. He did so well, that he was invited to stay for the full 3 hours, and I was sent on my way. He will be attending 5 days a week for 3 hours. This is going to be awesome for him. He SO desires to learn and interact with others.
Looking at him on the playground today with the other children, I felt so incredibly thankful for the progress he has made. It is absolutely amazing. Fingers crossed TIGHT that things continue to go well! Fifth birthday and Disney Cruise coming, so much to look forward to <3.
An important milestone in Lucas’ recovery was the removal of his port. This happened just a week ago. Dr. Dokler at Wolfsons Children’s Hospital in Jacksonville, FL performed the procedure. It went flawlessly and Lucas is healing well. He was really adorable before his surgery. He had some “happy juice” and was giggling on his ride to the OR. He exclaimed, “Oh boy, I have to sit up for this!” During recovery he consumed a Popsicle, a blue slushy, and an entire bottle of orange PowerAde. We are incredibly thankful that this went so well and we are excited about the opportunities this creates for Lucas.