LOVE FOR LUCAS

The latest and greatest with the amazing Lucas Francisco Gonzalez a three year old with Hyper IGM Syndrome undergoing a bone marrow transplant that began in January 2012. Email Lucas at: loveforlucasg@gmail.com
Who I Follow

This is my last post.  We are closing this chapter.  Lucas is well, and he is ready to move on.  We are thankful to have begun to feel like a “normal family” with a “normal kid.”  We are eternally grateful to so, so, so many people for whom helped Lucas get well.  We intend to leave this blog here as a story of hope, good will, and courage for other families who may face a similar situation and set of decisions. Reddit will always be with us (see the Reddit tattoo post). 

Lucas is headed to Kindergarten in just a few short months.  He is a boy with many dreams, and the good fortune to have a new, functioning immune system.

Grow cells grow.

The Gonzalez Family <3

Lisa & Dave (Ironyx) Get Married!!!

To our amazing Reddit friends,

We thought you’d like to know that Lisa & Dave finally tied the knot!  Dave is now officially, “Uncle Dave!”  They had a really fun wedding and even had robot cake toppers!  Lucas and Liam were the official cuties, Luis performed the ceremony, and I was the matron of honor.   Send them a note of congrats if you get a chance via Reddit (Ironyx), they will be tickled! 

Two Year Post Transplant Check-Up

In April, we traveled back to Durham, NC for Lucas’ annual post-transplant evaluation.  We have come to love these trips.  It is uplifting to see the people who we are so grateful to for Lucas’ care and continued improvement.  Lucas remembers very little about his transplant - what once was referred to as “his special room” has now left his recollection.  Despite that, there are people who Lucas remembers well!  Dr. Parikh, Ketti, Charlotte, and Miss Buzzbee (Claire) just to mention a few. 

His studies were very positive and aligned with what we were hoping for.  He continues to have a mixed, but stable chimerism.  It is not changed much from a year ago, which, again, is good.  Based on these results, Lucas will begin to get his first round of immunizations.  Here is to hoping they take!  Go new immune system, go!

Wish-Wrap-Up Party

Subaru of Jacksonville held Lucas a super sweet surprise Wish-Wrap-Up party.  It was Jacksonville Jaguar themed (his favorite team).  The amazing owners gave Lucas and Liam each a set of Legos, a signed Jaguars helmet, and the ultimate surprise:  A trip to Disney for our family!!!  Thanks to Florida Resident Specials we were able to visit: Magic Kingdom, Animal Kingdom, and Epcot.  The boys loved every minute!  We took the trip at Liam’s birthday in January and again for Mother’s Day.  Thank you to Subaru for making this year so special.  

Disney Cruise

Our family would like to sincerely thank Make-A-Wish for providing our family with such a wonderful celebration of Lucas’ recovery and fifth birthday!  We set sail aboard the Disney Dream in October!  We were very fortunate in that many members of our family and close friends were able to book and join us on this adventure. 

Disney Cruise

Our family would like to sincerely thank Make-A-Wish for providing our family with such a wonderful celebration of Lucas’ recovery and fifth birthday!  We set sail aboard the Disney Dream in October!  We were very fortunate in that many members of our family and close friends were able to book and join us on this adventure. 

Enjoying this Fall Season!  Last year at this time, Lucas was still wearing a mask.  Look what a year can accomplish!

With the removal of his port and his most recent chimerism studies, added with his not having required IVIG in some time, Dr. Parikh made the recommendation that Lucas would be ready for a Pre-K setting.  This news was incredibly exciting but also anxiety ridden for his Mommy!  Immediately, I began asking internal questions:

-          Where is there going to be a program that still has space and is high quality?

-          What will the sick policies look like?

-          How am I going to facilitate all of this now, with everything we have going on???

YIKES!  Deep breaths and calm words from Daddy, helped me to settle down!  Thankfully, we were able to find a wonderful program, with one special spot for Lucas, it opened because a family was relocating.  The sick policy far exceeds that of MANY other settings.  Can you believe that in some schools the kids have to vomit twice (not just once) before they are sent home?  I was astounded.

Lucas had his first full day today.  He met his teacher yesterday, and today was his transition day to see how he would do.  He did so well, that he was invited to stay for the full 3 hours, and I was sent on my way.  He will be attending 5 days a week for 3 hours.  This is going to be awesome for him.  He SO desires to learn and interact with others.

Looking at him on the playground today with the other children, I felt so incredibly thankful for the progress he has made.  It is absolutely amazing.  Fingers crossed TIGHT that things continue to go well!  Fifth birthday and Disney Cruise coming, so much to look forward to <3.

An important milestone in Lucas’ recovery was the removal of his port.  This happened just a week ago.  Dr. Dokler at Wolfsons Children’s Hospital in Jacksonville, FL performed the procedure.  It went flawlessly and Lucas is healing well.  He was really adorable before his surgery.  He had some “happy juice” and was giggling on his ride to the OR.  He exclaimed, “Oh boy, I have to sit up for this!”  During recovery he consumed a Popsicle, a blue slushy, and an entire bottle of orange PowerAde.  We are incredibly thankful that this went so well and we are excited about the opportunities this creates for Lucas.

We are soooooo excited!!!

We are soooooo excited!!!